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Chronic Interstitial Cystitis & Vulvodynia Make Me Feel Broken

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Betty Dodson

Dear Dr. Betty,

I am unsure if this is the right email to ask you a question since there are several on your website. I wish if possible that you don't post my question on your website.

I am 24 and at the age of 20 I was diagnosed with chronic interstitial cystitis and vulvodynia. I have seen at least 10 specialists from urology, gyno, pelvic floor physio, etc. I feel that down there doesn't belong to me after being examined over and over again on a weekly basis.

Every three weeks I go to the hospital for an installation into my bladder through a catheter. I also go for pelvic floor physiotherapy every three weeks. My vagina is often very red or raw. I often have pain. When I try and masturbate there is no use because it just hurts more. I don't seek any personal relationships because I feel broken. I fear sex because I know it's going to hurt.

Do you have any suggestions?

S

Dear S,

I am not a medical doctor but a sexologist. However, it seems to me you are being excessively treated and some of it sounds like they actually worsen your condition. Instead of being a passive victim of medical procedures. I suggest you take control of the situation by devising your own more natural approach. I just went to Google and found a lot of information that might be helpful. One good site was:

http://www.interstitial-cystitis-alternatives.org/4-step-guide-to-recove...

Also regular loving and gentle vulva massage using an organic oil with your mind focused on healing while repeating some phrase so you mind is thinking positive, will help you to heal yourself. Louse Haye's little book "Heal Your Body" has been very helpful to many. She looks at the mental causes for illness and suggests a metaphysical approach to overcome them.

The mind is a very powerful tool for healing. She believes that bladder problems come from anxiety, holding onto old ideas, fear of letting go and being pissed off.  One phase she suggested repeating: "I easily and comfortably release the old and welcome the new in my life. I am safe."

You can change the words to please yourself, but you have nothing to loose by giving this a try. Anything would be an improvement over what you have described in your email. It sounds like the medical professionals are torturing you in the name of curing you. Time for you to take control of your own healing path. Wishing you a happy recovery.

Dr Betty

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