I'm 19. When I was 13 I had my first period. No pain. That was the last period I had until I went to college. Every time you go to the clinic on campus, they ask you when your last menstrual cycle ended. My answer was I haven't had one since I was 13. Their immediate reaction was "that's not normal you should go to the OBGYN." I had been to the doctor previously when I was young and they said I was normal. They said there was no thickening of the lining of the uterus. There was no hormonal imbalances.
I eventually gave in and went to the OBGYN. The tests were performed again. Same results. Everything was normal. However, I was diagnosed with PCOS and was told my only option was to go on birth control. I was on the pill for three months. Awful (life stopping) cramps, my ovaries and uterus and cervix and boobs hurt all of the time, and I became functionally asexual. It was awful! I asked to be changed on the kind of birth control, and that worked for a while, but now the same thing is happening. I shouldn't be in this much pain all of the time.
My question is if I'm normal when not menstruating, why do I have to change the way I am? Is it possible to not mensturate and be healthy for me? If I truly do have PCOS, then isn't birth control just masking the problem and not fixing it? What are my options? I'm just tired of the constant pain and feeling like I have no options. please help.
I too had ovarian cysts. I didn't start menstruating until I was 16 and periods were not regular and caused agony that sent me home to bed when they happened. Back then the big pharmaceutical companies weren't spending billions of dollars to lobby Congress and wine and dine doctors to get them to prescribe their latest medications.
My worst symptom was a wicked case of acne and being a bit overweight. Mother and I finally went to see a dermatologist who said "No more pork chops and sugar. (I loved greasy foods and was a sugar addict). After changing my diet and improving my skin cleansing regimen I was down to one or two pimples right before my period.
I just read web md for women and they start with the same suggestions: change your diet, get more exercise and don't smoke cigarettes. The biggest problem with PCOS seems to be a difficulty in getting pregnant. At 19 I doubt that's a big concern for you. So I say listen to your body. Stop taking the damn birth control pills that line the pockets of big pharma. Be your own doctor and get into alternative methods of healing.
As soon as our medical professionals get a fancy name like PCOS they can scare us into taking meds to fix it. What a racket. Your too smart to fall for that crap. The body heals the body and we are all quite unique. Orgasms eventually cured my awful cramps. Once I had one, the blood would begin to flow and my painful cramping disappeared. I successfully and happily used a diaphragm during my fertile years with no problems unless I didn't use it. Carlin has written about her experience of going off the pill onto the diaphragm. She got her sex drive back and feels great now.